Ethical overview of health research with regardto the protection of personal health data

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Atıf İçin Kopyala

Gokcay B., ARDA B.

TURK KARDIYOLOJI DERNEGI ARSIVI-ARCHIVES OF THE TURKISH SOCIETY OF CARDIOLOGY, cilt.47, sa.3, ss.218-227, 2019 (ESCI)

• Yayın Türü: Makale / Tam Makale
• Cilt numarası: 47 Sayı: 3
• Basım Tarihi: 2019
• Doi Numarası: 10.5543/tkda.2019.15957
• Dergi Adı: TURK KARDIYOLOJI DERNEGI ARSIVI-ARCHIVES OF THE TURKISH SOCIETY OF CARDIOLOGY
• Derginin Tarandığı İndeksler: Emerging Sources Citation Index (ESCI), Scopus, TR DİZİN (ULAKBİM)
• Sayfa Sayıları: ss.218-227
• Anahtar Kelimeler: Research ethics, informed consent, privacy, health law, confidentiality
• Ankara Üniversitesi Adresli: Evet

Özet

Retrospective file research is very common in daily medical practice. Approval is required under current law for the review of personal genetic data, and the informed consent of all research subjects is necessary before conducting non-prospective research. In this article, the protection of personal data will be reviewed within the context of informed consent, the protection of confidentiality, the use of good anonymization techniques, research ethics, and medical law.