Family-centeredness of services for young children with Down syndrome: an observational study from Turkey

BİNGÖLER PEKCİCİ E. B., ÖZALP AKIN E., Akpinar F., HAYRAN G., Keles C., Yagbasan B., ...Daha Fazla

TURKISH JOURNAL OF MEDICAL SCIENCES, cilt.51, sa.1, ss.246-255, 2021 (SCI-Expanded, Scopus, TRDizin) identifier identifier identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 51 Sayı: 1
  • Basım Tarihi: 2021
  • Doi Numarası: 10.3906/sag-2009-76
  • Dergi Adı: TURKISH JOURNAL OF MEDICAL SCIENCES
  • Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus, Academic Search Premier, CAB Abstracts, EMBASE, MEDLINE, Veterinary Science Database, TR DİZİN (ULAKBİM)
  • Sayfa Sayıları: ss.246-255
  • Anahtar Kelimeler: Down syndrome, disability, children with special needs, family-centered care, measure of process of care (MPOC), CEREBRAL-PALSY, CARE, PARENTS, VALIDATION, REHABILITATION, PERCEPTIONS, DELIVERY, SUPPORT, TRANSLATION, INFORMATION
  • Ankara Üniversitesi Adresli: Evet

Özet

Background/aim: Physicians require information on the family centeredness of services for children with Down syndrome, one of the most frequently encountered disabilities in childhood. We aimed to determine the family-centeredness of services for young children with Down syndrome and using a bioecological theory framework we hypothesized that child, family and service-related factors would be associated with such services.